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Medicine has triumphed in modern times, transforming birth, injury, and infectious disease from harrowing to manageable. But in the inevitable condition of aging and death, the goals of medicine seem too frequently to run counter to the interest of the human spirit. Nursing homes, preoccupied with safety, pin patients into railed beds and wheelchairs. Hospitals isolate the dying, checking for vital signs long after the goals of cure have become moot....
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"After my son Kyle Ferriera van Leer declared his major in Egyptology at Yale in 2010, he mentioned the Book of Two Ways in passing. Without knowing a thing about it, I said, "That's a great title for a novel." It was only after he began to explain what it actually was that I realized what I needed to write about - the construct of time, and love, and life, and death"--
Dawn Edelstein is on a plane when she is told to prepare for a crash landing....
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"Up to the 1970s, most Americans died swiftly: of heart attacks, strokes, cancer, or in accidents. But in the past three decades, medical advances have extended our lives and changed the way we die. Journalist Kiernan reveals the disconnect between how patients want to live the end of life--pain-free, functioning mentally and physically, surrounded by family and friends--and how the medical system continues to treat the dying--with extreme interventions,...
Author
Pub. Date
[2019]
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English
Description
"An inspiring, informative, and practical guide to navigating end of life issues, by a groundbreaking expert in the field and the New York Times bestselling author of Knocking on Heaven's Door. In the mid-1400s, an unnamed Catholic monk composed a popular self-help book called Ars Moriendi, or The Art of Dying. Written in Latin, this medieval death manual taught people how to navigate the trials of the deathbed, using simple rituals of repentance,...
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Sharing stories of real people they have encountered as professional hospice caregivers, the authors explore both the practical and philosophical aspects of the hospice movement. Straightforward and nontechnical in approach, Hospice, A Labor of Love offers help and inspiration to hospice volunteers, pastoral counselors, and the families of those who are receiving hospice care.
6) LGBTQ-Inclusive Hospice and Palliative Care: A Practical Guide to Transforming Professional Practice
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English
Description
This is the only handbook for hospice and palliative care professionals looking to enhance their care delivery or their programs with LGBTQ-inclusive care. Anchored in the evidence, extensively referenced, and written in clear, easy-to-understand language, LGBTQ-Inclusive Hospice and Palliative Care provides clear, actionable strategies for hospice and palliative physicians, nurses, social workers, counselors, and chaplains.
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A series of recent landmark cases have highlighted the issues surrounding assisted suicide and may be shifting public opinion in the direction of greater freedom. These essays cover every aspect of the topic from the legal and religious issues to the deeply personal experiences of patients and careers. They present a reasoned libertarian argument for people with terminal conditions, or poor quality of life due to illness or treatment, to be allowed...
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English
Description
All of us are entitled to the rewards of a peaceful, pain-free death. This book honors that with true stories about hospice patients and inspiring insights from the author. Becoming Dead Right guides us through the general and "how to" information maze that prepares us for dealing with death. Improving and expanding hospice services will require systemic changes in healthcare institutions, outreach to diverse populations, and funding. With the inclusion...
Author
Pub. Date
[2020]
Language
English
Description
"Though we all face death, it is common to be unprepared and to avoid any discussion concerning our final days. Dr. Jeff Spiess examines the culture of death-related anxiety in America, providing readers with actionable steps and spiritual guidance to prepare fiscally, legally, mentally, and physically for their end"--
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English
Description
Framed by the author's personal odyssey as a caregiver and richly informed by the inspiring and poignant tales of others, Caregiving explores medical and financial problems, all aspects of spirituality, and such issues as depression, stress, housing, home care, and end-of-life concerns. A rare blend of powerful storytelling and practical information, Caregiving is a revelation.
Author
Pub. Date
2018.
Language
English
Description
"The authoritative, informative, and practical follow up to BEING MORTAL, on end-of-life care for patients over the age of 65. Most people say they would like to die quietly at home. But overly aggressive medical advice, coupled with an unrealistic sense of invincibility, results in the majority of elderly patients misguidedly dying in institutions while undergoing painful procedures, instead of having the better and more peaceful death they desired....
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English
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"In 2015, the Argentinian novelist Eduardo Berti spent several weeks in a "medico-literary" residency at the University Hospital Centre in Rouen, France, observing and conversing with the staff and volunteers of its palliative care department. From that experience he created this series of lightly fictionalized testimonials from nurses, nursing aides, doctors, administrators, porters, volunteer musicians, and the other people who make the unit tick....
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English
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As a part-time hospice volunteer, Eric Lindner provides "companion care" to dying strangers. They're chatterboxes and recluses, religious and irreligious, battered by cancer, congestive heart failure, Alzheimer's, old age. Some cling to life amazingly. Most pass as they expected.
In telling his story, Lindner reveals the thoughts, fears, and lessons of those living the ends of their lives in the care of others, having exhausted their medical options...
Author
Pub. Date
2022.
Language
English
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Description
"A musician facing the untimely end of his career. An end-of-life doula with everything, and nothing, to lose. A Star Is Born meets Me Before You in this powerful novel by the author of A Million Reasons Why. As an end-of-life doula, Nova Huston's job-her calling, her purpose, her life-is to help terminally ill people make peace with their impending death. Unlike her business partner, who swears by her system of checklists, free-spirited Nova doesn't...
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English
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From a longtime end-of-life "midwife," a practical guide to navigating the transition from life to death. Fersko-Weiss recounts beautiful stories that show that dying doesn't need to be as bleak and soul-wrenching as we think. It can be meaningful and even life-affirming.
The doula approach to death offers opportunities to explore the meaning of life and to convey that meaning through legacy work. Based on the model of care provided by birth doulas,...
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Language
English
Description
This book details Anne Allbright Smith's eleven days of discomfort and pain as she voluntarily stopping eating and drinking (VSED) to bring about her own death. This was despite compassionate hospice care throughout.
There is overwhelming public support for Medical Aid in Dying (MAID). Yet only ten states and the District of Columbia have MAID statutes on their books. Why won't more legislators support the will of their constituents?
By contrast,...
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